The Summer Solstice may have passed for this year, but the fundraising hasn’t stopped the Alzheimer’s Association’s Longest Day campaign.  Two guys from Peoria Illinois, Bob Fussner and Jody Summers, are hosting the first Vintage Bike Ride to End ALZ. Mr. Fussner is an avid collector of vintage bicycles, and Mr. Summers enjoys riding. Dementia and Alzheimer’s have touched both of their families. So, they thought why not DO something they love FOR someone they love, and raise some money to help fight a disease that has touched so many lives, not just in Illinois, but worldwide. The two hosts state that although the ride is themed as vintage bikes, all types of riders and bikes are welcome. The event will take place on Saturday, August 19, 2023.  Registration and packet pick up will start at 11:00 am next to the water tower at Junction City Shopping Center in Peoria.  The ride will leave Junction City at noon, head south on the Kellar Branch Greenway bike trail, and proceed to Oliver’s in the Heights.  After a quick stop, they will proceed down Prospect Ave. in Peoria Heights to Pour Bros. Taproom for a mid-ride break.  After the break, riders will cross Prospect and jump back on the bike trail to head back to Junction City. “We realize this is a short ride,” says Summers, “but vintage bikes are heavy, and it may encourage families with smaller children to ride the shorter distance.” They will have vintage bikes on display and hope to have snacks, drinks, and music if ridership numbers increase. Registration for the ride is $30.00 per rider. T-shirts and goodie bags will go to the first 50 registrants. You can also register at the time of the ride at Junction City. Several outstanding businesses have also donated to the ride including Russel’s Cycling and Fitness, The Tavern on Prospect, Junction City Pub, Trefzger’s Bakery, Oliver’s in the Heights, White Income Tax, and Olio & Vino. Although this is our first try with a fundraiser, we hope it will develop into a larger event with a bicycle swap meet, live music, and food vendors in future years. For more information, please contact Jody Summers at (309) 472-3189, or j.summers64@yahoo.com. Event Details. Vintage Bike Ride Saturday, August 19, 2023 (11:00 A.M.) Junction City Shopping Center 5901 N Prospect Rd Peoria, IL 61614

On Saturday, September 30th this free educational seminar will be held at the main branch of the Gail Borden Public Library District in Elgin. The 60- to 90-minute seminar will begin at 10 am. The seminar is ideal for the person diagnosed with Alzheimer’s disease or other chronic or terminal disease and his or her caregiver or other family members involved in planning for their loved one’s care. Participants will learn how to: Rebuild their financial plan given the diagnosis. Budget for the cost of the disease. Locate financial resources available to families to help meet care expenses. Have “the talk” about money with their loved one diagnosed with a chronic or terminal disease. In addition, there will be guidance provided on coverage of the new drug Leqembi by Medicare. Leqembi was recently approved by the U.S. Food and Drug Administration (FDA). Leqembi slows progression of the disease. It is never too late or too early to plan! The main branch of the library is located at 270 N. Grove Avenue in Elgin, IL. To reserve a seat, call the library at 847-742-2411 or the Alzheimer’s Association at 800-272-3900.

For over a decade, Holly Koontz has participated in the Peoria area Walk to End Alzheimer’s in honor of the family members she has lost to Alzheimer’s disease. She sits on the Marketing Committee and provides day-of event support year after year. Participating in Walk is her way of maintaining hope for a future without the disease. Holly has witnessed family members face Alzheimer’s disease and dementia since she was in her teens. “I was a caregiver for my grandpa when I was in high school to give my grandma a break on Sundays. It was my first encounter with Alzheimer’s…My grandma did so much to keep him home instead of a care facility.” Tragically, Holly’s exposure to the disease didn’t end there. Holly saw multiple aunts and uncles succumb to the disease, and one of her uncles is currently living with the disease. She knows her experience is not unique. “This impacts most every family I know at some point in time.” “I’ve lost two grandparents on opposite sides of my family [to the disease],” shares Holly. “I fear that one or both of my parents will get it as there is so much family history.” “This disease is so very sad,” Holly says. “The person with it may not know what is happening but the loved ones see every day how that person is lost within themselves.” Participating in the 2023 Walk to End Alzheimer’s – Peoria Metro is Holly’s way to “memorialize my family members who have been lost to the disease and honor those who currently are battling it.” This will be her fourteenth year involved in the event. “It gives me hope that treatments will be created and ultimately a cure,” shares Holly. “Someone once said to me that it’s so easy for people to donate to childhood charities or animals but we often forget about the issues that impact the elderly.” She acknowledges that all of these causes are extremely worthwhile, but Alzheimer’s has special meaning to her. It’s where she focuses most of her energy. For Holly, it’s a way “to thank my grandparents and aunts and uncles for all they did for me.” Honor your loved one by registering for the 2023 Walk to End Alzheimer’s in your community. Get started at alz.org/walk

In the heart of Chicago, a unique cultural experience is about to unfold—an exhibit that transcends generations illuminates the power of memory, and brings forth the resilience of the human spirit. Through a heartfelt collaboration, the Alzheimer’s Association will exhibit an ofrenda to honor those who have passed from Alzheimer’s and dementia at the National Museum of Mexican art during the Museum’s Dia de los Muertos exhibit – Living Presence beginning on Friday, September 22nd. Alzheimer’s is a disease that touches the lives of millions, and within the Hispanic and Latino communities, it strikes with a 1.5 times HIGHER incidence. To address this growing concern, the Alzheimer’s Association, community caregivers and local artist Gabriel Moreno have created an Ofrenda that explores the memories of those who lived with Alzheimer’s and dementia. The Ofrenda, steeped in the rich Mexican tradition of honoring loved ones who have passed, will feature oral histories, cherished family photographs, and treasured objects, offering a poignant glimpse into the lives of Maria B. Cerda, Jose R Gonzalez, Abraham Montelongo, and Socorro Rocha. These are the individuals who, while grappling with memory loss, have left indelible marks on their families and communities. As the dates of this remarkable Ofrenda draw near, we invite you to be part of this collaboration by sharing the news so that all of those affected by this disease can be together to remember their loved ones that have passed. By participating, you not only honor the memory of those affected by Alzheimer’s and dementia but also contribute to the Alzheimer’s Association’s mission to create a world without Alzheimer’s. To celebrate our partnership, we will be hosting an After School Fiesta at the National Museum of Mexican Art on Thursday, September 28th from 3-4:30pm. We are inviting all families to come and enjoy fun activities together. To register, please visit bit.ly/ALZOfrenda2023. About the National Museum of Mexican Art: The National Museum of Mexican Art is a premier cultural institution that showcases 3,600 years of creativity and is dedicated to preserving, interpreting, and casting Mexican art and culture. Located in Chicago, it stands as a vibrant hub for artistic expression and cultural exchange.

“Having a loved one with Alzheimer’s or another form of dementia is heartbreaking. It is like losing them twice.” says Alzheimer’s Association’s Diversity & Inclusion Manager, Amelia Garza. Garza was a caregiver for her grandmother who suffered from the disease and after losing her in February, she set out to help connect families with a shared experience in the hopes of celebrating their loved ones’ lives together. In partnership with the National Museum of Mexican Art and local artist Gabriel Moreno, Garza spearheaded the Alzheimer’s Association’s ofrenda installation as one of the pieces in the Museum’s Día de Muertos exhibit – Living Presence. The ofrenda celebrates the lives of four individuals, Maria B. Cerda, Jose R Gonzalez, Abraham Montelongo, and Socorro Rocha, who lived with Alzheimer’s or another form of dementia and is available to visit at the Museum from September 22nd through December 10th. Not only will community members be able to see the physical ofrenda, but any viewer will be able to upload their own picture of a loved one who has passed from the disease to the Alzheimer’s Association’s Digital Ofrenda (also available at the following link: alzheimers-illinois.org/Ofrenda/). Alzheimer’s is a disease that touches the lives of millions, and within the Hispanic and Latino communities, it strikes with a 1.5 times HIGHER incidence. With new treatments emerging, families will soon be able to have more quality time with their loved ones. However, these treatments are only effective during the early stages of the disease. “Given that Hispanic and Latino communities are less likely to receive an early diagnosis, I worry that our community won’t be able to benefit from treatments. The Alzheimer’s Association’s physical and digital ofrendas are a way for the community to realize that we are here. We are in your corner ready to fight with you. It also says that you have a community around you who has or is currently going through the same thing. You aren’t alone.” As the dates of Día de Muertos draw near, we invite you to be part of this collaboration by sharing the news so that all of those affected by this disease can be together to remember their loved ones who have passed. By participating, you not only honor the memory of those affected by Alzheimer’s and dementia but also contribute to the Alzheimer’s Association’s mission to create a world without Alzheimer’s.

Shared by Meredith McKinley: Caring for a loved one with Alzheimer’s is a journey filled with unexpected twists, challenges, and profound moments of love and resilience. My family’s journey with Alzheimer’s began around a decade ago when we noticed the subtle signs of dementia in our beloved mother. It was a daunting realization, but as a family, we united to face this new chapter of life together. With siblings scattered across different cities, the challenge of long-distance caregiving emerged. Despite the physical separation, we remained deeply involved in our mother’s care. Our research led us to Lenbrook Atlanta, a graduated care facility, which provided a supportive environment that evolved with her changing needs. It was a crucial decision, offering her a sense of security as her Alzheimer’s progressed. As the disease advanced, our mother’s care requirements grew, and we had to adapt accordingly. Caregivers like Tina played a crucial role in ensuring her comfort and well-being. And when she faced a respiratory infection last December, we explored the Memory Care unit at Lenbrook, providing a smaller, more secure environment with specialized care led by Shonda and her experienced team. Distance was a significant challenge, but we overcame it through frequent communication with the care team and regular visits and calls. Postcards and cards brightened her days and kept us connected. The emotional toll of witnessing our mother’s decline was a heavy burden to bear, but we found solace in the small, beautiful moments and the belief that she still felt our love. Patience and a strong support network, including our loving spouses and understanding siblings, were indispensable. One vital aspect of Alzheimer’s caregiving was remembering who our mother was before the disease. Sharing her life story with her caregivers helped them understand the person they were caring for, fostering a more personal and compassionate connection. Caring for a loved one with Alzheimer’s is a profound experience, and it’s not without its highs and lows. Through it all, we hold onto precious moments, practice patience, and cherish the essence of the person our mother once was. In the end, it’s the love and care that matter most, reminding us that our mother’s legacy lives on in our hearts and actions. Alzheimer’s may change a person, but it doesn’t diminish the love and bonds that hold families together.

During Financial Wellness Month this January, the Alzheimer’s Association is encouraging individuals and families to take stock making financial plans that will create some security in preparing for an unexpected crisis of caring for someone with Alzheimer’s or other dementia. One in nine Americans age 65 and older are living with Alzheimer’s disease – that’s more than 6 million Americans across the country and 233,000 here in . The disease not only takes a tremendous physical toll on diagnosed individuals, but the costs associated with the disease can be overwhelming and put a huge economical strain on families. Disease-related costs can jeopardize a family’s financial security, and many families and caregivers make enormous personal and financial sacrifices. The 2023 Alzheimer’s Association Alzheimer’s Disease Facts and Figures report found: ● In 2022, the lifetime cost of care for a person living with dementia was $392,874. ● In 2021, dementia caregivers bore nearly twice the average out-of-pocket costs of non-dementia caregivers ($12,388 versus $6,667). ● Nearly half (48 percent) of care contributors must cut back on their own expenses – including basic necessities like food, transportation and medical care – to afford dementia-related care, while others must draw from their own savings or retirement funds. ● Nearly two out of three people incorrectly believe that Medicare helps pay for nursing home care, or are unsure whether it does. To help families navigate these and other financial challenges, the Alzheimer’s Association recently launched a free online education program, “Managing Money: A Caregiver’s Guide to Finances.” Tips from the program include: ● Plan early — There are many benefits of planning early when it comes to your finances – both for the caregiver and the person with the disease. ● Start a positive discussion about finances — Bring in trusted family members or close friends for a discussion about what the person with the disease wants for the future. ● Avoid financial abuse and fraud — Individuals living with dementia have a greater risk of becoming victims and may struggle with making good financial decisions. ● Organize your finances — Conduct an inventory of your financial resources (savings, insurance, retirement benefits, government assistance, VA benefits, etc.). A financial planner or elder care attorney can help. ● Create a backup plan — Designate a trusted back-up agent for the person’s power of attorney and consider designating responsibilities to more than one person. “Many caregivers experience financial problems because they have to reduce their hours or take time off work,” said Delia Jervier, Executive Director, Alzheimer’s Association, Illinois Chapter. “As the disease progresses, caregivers will need to pay for services or support for the person living with Alzheimer’s. Financial literacy is especially important for caregivers, because it provides them with the knowledge and skills needed to better support themselves and others.” For more information on financial planning, visit: Plan for Your Financial Future or alz.org.

Honoring Trailblazers who are making an impact this Black History Month In honor of Black History Month, Board member of the Illinois Chapter of the Alzheimer’s Association Carol Shaw Burns, Ph.D, a leader in the field of senior care and dementia research. With a background as a licensed nursing home administrator and certified dementia practitioner explains disparities with African Americans caregivers. Dr. Burns’ expertise spans various aspects of senior care, from independent living to skilled nursing, but her passion lies in understanding and addressing the challenges faced by dementia family caregivers, particularly within the African American community. Dr. Burns shed light on the significant stressors experienced by these caregivers, with coping with dementia-related behavioral symptoms emerging as a particularly daunting task. Her research has uncovered alarming statistics: dementia-related behavioral symptoms afflict up to 92% of cases and contribute to a staggering 30% of all dementia-related costs in our communities. For African American caregivers, the burden is exacerbated by racial disparities, as increased frequency of these behaviors leads to heightened strain and upset compared to their non-Hispanic White counterparts. She highlighted the “double jeopardy” faced by African American caregivers, who not only spend more time in the caregiving role but also have less access to formal support and resources. “This chronic stress, coupled with health disparities, underscores the urgent need for targeted interventions and policies to support these caregivers.” Guided by the stress process model, Dr. Burns’ groundbreaking research aims to unravel the complexities of caregiving experiences among African American caregivers. “By exploring racial differences in stressors and resources, as well as their impact on mental health outcomes over time, we hope to inform the development of more equitable and supportive environments for all caregivers.” Dr. Burns also serves as board member of the Illinois Chapter of the Alzheimer’s Association, where she serves not only as a board member but also on the DE&I committee, that supports education and awareness for diverse elders and their family member caregivers. Dr. Burns also serves as the Co-Chair for Illinois Women Conquer ALZ (IWCA), a group dedicated to engaging more women in the fight against Alzheimer’s. To learn more about this inspiring group or women or to join, visit ilalzwomen.org. As we celebrate Black History Month, let us honor the invaluable contributions of individuals like Dr. Carol Shaw Burns, whose dedication to improving the lives of others is truly inspiring. Through her pioneering research and advocacy. She is not only advancing our understanding of caregiving in diverse communities but also making a tangible difference in the lives of countless families affected by Alzheimer’s and all other dementias.

Deb, a retired special education teacher shares her story on how Alzheimer’s has impacted her and her family’s life. The past few years have been challenging due to the isolation caused by the COVID-19 pandemic. However, a glimmer of joy entered my life when I finally reunited with three of my four grandchildren after almost four years. The joy of witnessing their growth and change made it one of the best days of my life. Despite my husband’s health problems, we are hopeful about resuming our travels soon. My journey with Alzheimer’s began when my mother, Jerlean Moore, started showing symptoms at the age of 75. Confused and desperate for guidance, I sought medical advice but received a disheartening prognosis of only five years. Determined to keep my mother at home, I turned to the Alzheimer’s Association, which provided invaluable resources for in-home care. Balancing caregiving with my job and family support, we managed to keep my mother at home until she peacefully passed away at the age of 93 in 2008. Inspired by her memory, I joined the Walk To End Alzheimer’s, involving my school community in creative fundraising efforts. Alzheimer’s is not just a disease affecting the elderly; it impacts entire families and caregivers. The Alzheimer’s Association offered crucial support and information to navigate the challenges of caregiving. It’s essential for society, including businesses, to join the fight against this cruel disease. My daughter, Dawn, played a pivotal role in caring for her grandmother and continues to contribute by participating in the Walk and fundraising at her workplace. Reflecting on my mother’s journey, I’ve learned to find humor in the midst of overwhelming moments, thanks to the support of individuals like Amber at the Alzheimer’s Association Illinois Chapter.  Family members also worked together to support my mother during her illness with donations and participation in the Walk. Sharing my story is a plea for understanding, compassion, and collective action. Whether through time, money, or advocacy, everyone can play a part in the fight against Alzheimer’s, bringing hope to those facing similar challenges.

I’m Debi Shandling, a 70-year-old woman who cherishes life’s melodies and embraces the beauty of family, hobbies, and community. Married since 1980 to my music school sweetheart, we share two children, three grandchildren, and a passion for bike riding, ballroom dancing, and savoring meals together. In 1980, I founded our family business, “Debi’s Piano Tuning and Repair Service,” which my son Trevor later joined. As retirement beckons, my days off are dedicated to nurturing my love for quilting, gardening, and relishing moments with my grandchildren. For the past 24 years, I’ve volunteered as a horticulturist at the Chicago Botanic Gardens, contributing to the sensory and circle gardens. My commitment extends to my congregation, Makom Solel Lakeside, where I sing in the choir, serve on the gardening committee, and engage in the librarian’s book group. My connection with the Alzheimer’s Association stems from a personal journey. My sister Laura, two years my senior, faced the relentless grip of Alzheimer’s in her late 40s. I have always been compared to her, with her being smarter and prettier…When she stopped caring about her appearance and was staring into space a lot…I didn’t put it together. Once I asked her if she was going to do a duet at her daughters’ recital. Her response was “I forgot how to play the piano!” She was an English teacher and loved school. Once she was diagnosed her husband had to take away her car driving privileges, get a caregiver and drastically change their plans of traveling together. I would visit my sister in the evenings so her husband could go bowling. When she still could talk, she said “don’t forget about me!” Witnessing her cognitive decline, from forgetting piano chords to losing the ability to talk and read, was heart-wrenching. Laura lived seven challenging years with Alzheimer’s, each day worse than the last, until pneumonia claimed her life. OLYMPUS DIGITAL CAMERA Motivated by Laura’s struggle, I advocate for Alzheimer’s awareness. Companies and organizations must engage with the Alzheimer’s Association because addressing this pervasive issue can make the world a better place. Personally, my involvement has softened my heart, offering solace to my 92-year-old mother NOW suffering with memory loss. Advocating for getting involved in the Alzheimer’s Association allows me to make a positive impact in memory of my sister, Laura Laney. Alzheimer’s is slow, mean, and unforgiving. It impacts lives indiscriminately, leaving no room for escape. Through my experiences, I implore others to be unwavering in their support for loved ones facing this relentless disease. As I navigate life with my mother, who often doesn’t recognize me, I find strength in participating in the Memory Walk and fundraising for the Alzheimer’s Association. Together, we can strive for a world without Alzheimer’s. Together, we can make even greater strides for the individuals and families navigating this journey. We hope you’ll join us again for a Walk to End Alzheimer’s near you. Register today to continue our momentum toward a future without Alzheimer’s and all other dementia! Click here to find your walk.

March is Women’s History Month, a time to celebrate the contributions and achievements of women throughout history. It’s also a moment to acknowledge the unique impact of Alzheimer’s disease and other dementias on women, both as individuals living with the condition and as caregivers. Research indicates that Alzheimer’s disproportionately affects women, with nearly two-thirds of Americans living with the disease being female. This gender disparity extends beyond prevalence rates; women are also more likely to serve as primary caregivers for loved ones with Alzheimer’s. They often face complex challenges, balancing caregiving responsibilities with other aspects of their lives, including work, family, and personal well-being. Several factors contribute to the increased risk of Alzheimer’s in women, including hormonal changes associated with menopause, genetic predispositions, and differences in brain structure and function. Additionally, societal factors such as caregiving roles, socioeconomic status, and access to healthcare may further impact women’s vulnerability to the disease. Women caregivers may experience higher levels of depression and impaired health than their male counterparts. Evidence suggests these differences arise because female caregivers tend to spend more time caregiving, to take on more caregiving tasks, and to care for someone with greater cognitive, functional and/or behavior problems. During Women’s History Month, it’s essential to recognize the resilience, strength, and contributions of women affected by Alzheimer’s. By raising awareness, supporting research initiatives, and advocating for better resources and support services, we can empower women to navigate the challenges of Alzheimer’s with dignity and compassion. Together, let’s work towards a future where all individuals, regardless of gender, have access to quality care, support, and treatments for Alzheimer’s and other dementias. Illinois Women Conquer ALZ (IWCA) seeks to engage and empower more women in the fight against Alzheimer’s disease by raising awareness and taking action through fundraising events, education and advocacy initiatives. Recognizing that Alzheimer’s disproportionately impacts women, IWCA was founded in 2017 by the Alzheimer’s Association Illinois Chapter to raise awareness and connect with more women. All activities align with and support the mission and strategic plan of the Alzheimer’s Association Illinois Chapter. To join Illinois Women Conquer Alz click here https://ilalzwomen.org As we commemorate Women’s History Month and Alzheimer’s Awareness in March, let us not only celebrate the achievements of women but also commit ourselves to the fight against Alzheimer’s disease. Together, we can honor the past, empower the present, and shape a better future for generations to come.

As we honor the brave men and women who have served our country, it’s crucial to recognize the unique challenges some veterans face even after returning home. One such challenge is the increased risk of developing dementia or Alzheimer’s, particularly for those living with post-traumatic stress disorder (PTSD) or traumatic brain injury (TBI). Dementia is a condition characterized by a decline in memory, thinking abilities, and daily functioning. While age and genetics play significant roles in dementia risk, veterans are exposed to additional factors such as PTSD and TBI, which can further elevate their susceptibility. PTSD, often stemming from traumatic experiences during service, is more prevalent among veterans and has been linked to nearly double the risk of dementia compared to their non-affected counterparts. Moreover, PTSD is closely associated with frontotemporal dementia (FTD), a group of disorders affecting specific regions of the brain responsible for various cognitive functions. Similarly, TBI, whether resulting from direct impact or indirect forces such as explosions, poses a significant risk factor for dementia. Even mild concussions can lead to long-term consequences, with moderate to severe injuries further amplifying the risk. Recognizing signs of TBI, such as confusion or difficulty in remembering events, is crucial for early detection and management. For veterans and their caregivers, understanding these risks is the first step towards proactive management. Seeking medical attention upon noticing any changes in cognitive function is imperative. An early diagnosis not only facilitates access to treatment but also enables individuals to participate in clinical trials and make necessary lifestyle adjustments. Caregivers play a vital role in supporting veterans living with dementia. As symptoms progress, behaviors such as anxiety, depression, or aggression may manifest, necessitating tailored care strategies. Creating a safe environment, free of potential hazards, and providing emotional support are essential components of caregiving. By fostering awareness and providing resources, the Alzheimer’s Association aim to empower veterans and their caregivers in navigating the complexities of dementia. From educational materials to practical caregiving tips, these resources offer invaluable support throughout the journey. As a community, let us stand in solidarity with our veterans, honoring their sacrifices by ensuring they receive the care and support they deserve. Together, we can make a meaningful difference in the lives of those affected by dementia, guiding them towards a future of dignity, compassion, and understanding.