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- Alzheimer’s Association invites Chicago residents to join 2024 Walk to end Alzheimer’s on September 21
On Walk day, participants honor those affected by Alzheimer’s with the poignant Promise Garden ceremony — a mission-focused experience that signifies our solidarity in the fight against the disease. During the ceremony, walkers will carry flowers of various colors, each color representing their personal connection to the disease. Mary Fus is not just a participant in the Chicago Walk to End Alzheimer’s; she is a beacon of hope and resilience in our community. As a repeat Elite Grand Champion and Chair of the Mission Committee, Mary has led her team and demonstrated unwavering dedication, raising over $355,000 and personally raising over $87,000 for Alzheimer’s care, support, and research. Reflecting on her journey as a caregiver for her mother, who battles Alzheimer’s disease, Mary shares, “It takes more patience than you can imagine, but it is also an honor to give back to her and care for her when she needs it the most.” Mary’s profound commitment to her mother’s well-being exemplifies the selflessness and compassion inherent in the caregiving journey. With each step she takes in the Walk to End Alzheimer’s, Mary honors her mother’s legacy while advocating for a future free from the grips of this devastating disease. “Our roles are reversed now,” Mary reflects "I take care of her like she took care of me growing up." Her unwavering determination to confront Alzheimer’s head-on is a testament to the enduring bond between mother and child. Chicago Walk fundraising deadlines August 20 Participants must raise $100 by August 20 to receive the official 2024 Walk t-shirt in time for Walk day on September 21. Fundraising continues until December 31. Those meeting the $100 goal after August 20 will receive their shirts on a rolling basis, three weeks after Walk day. September 1 Become an Elite Grand Champion by raising $2,500 by September 1 to have your name on a personalized yard sign along the Walk route. Teams raising $15,000 by September 1 earn a table in the top team area on Walk day. Teams raising $25,000 earn a hospitality tent on Walk day. The Corporate Challenge ends on September 1, and the winner will be announced at the Walk. For more information, email Mary DeMars at mcdemars@alz.org. September 16 Become a Grand Champion by raising $1,000 to earn a free parking pass on Walk day. September 21 Become a Champion by raising $500 to receive a medal in the Champions Club tent on Walk day. Medals can be dropped off or shipped if you cannot attend the event. “This is a pivotal moment in the fight against Alzheimer’s. There are now treatments that change the course of the disease,” said, Mary DeMars, Alzheimer’s Association Walk Manager “We hope that everyone in our community can join us by starting a team to help the Alzheimer’s Association raise awareness and funds for families facing the disease today, take more steps toward treatments and finally ending this disease.” For more information about the Chicago Walk to end Alzheimer’s or to find your Walk click here.
- New study finds financial declines as an early warning sign of Alzheimer’s
BY: KERRY PECK & PAYTON MOORE An Alzheimer’s diagnosis is undoubtedly strenuous for both the person living with Alzheimer’s and their loved ones. Financial problems can only exacerbate this challenging and uncertain time in their lives. However, according to new research, warning signs for a memory disorder may now be discoverable through a person’s financial decision-making. The Federal Reserve Bank of New York (FRBNY) and Georgetown University employed economists and medical experts to conduct and publish a study regarding the financial consequences of undiagnosed memory disorders. To analyze how individuals borrowed money before and after a diagnosis of Alzheimer’s or another memory disorder, researchers combined Equifax data from FRBNY’s Consumer Credit Panel and Medicare records from the Medicare Beneficiary Summary File. Data retrieval for both types of records spanned from 2000 to 2017. Researchers compiled data of almost 2.5 million Americans, ages 65 and over, with roughly half a million of whom were diagnosed with Alzheimer’s or another memory disorder. Due to the volume of data available, researchers were able to finely examine specific subgroups of individuals based on demographics such as race, sex, and household structure. Prior to a diagnosis of a memory disorder such as Alzheimer’s, a person’s cognitive decision- making ability is affected and begins to deteriorate. This includes financial decision-making and risk tolerance. According to the study, these people may miss payment deadlines, make impulsive purchases, or take part in risky investments, all of which they would not have done prior to the onset of a memory disorder. For instance, one year before diagnosis of a memory disorder, these people were 17.2% more likely to be delinquent on mortgage payments and 34.3% more likely to be delinquent on credit card bills. Even more surprising, average credit scores of people suffering from Alzheimer’s or another memory disorder begin to deteriorate up to five years prior to a diagnosis and continue to decrease in the time leading up to a diagnosis. Further, this study estimates that up to 600,000 payment delinquencies will happen within the next decade because of undiagnosed memory disorders. Realistically, this number is likely to be much higher. These estimated delinquencies were determined from the information documented in credit reports, including late or missed payments; however, many people can be financially impacted in other ways that do not necessarily show up in financial reports. Along with this, people with an undiagnosed memory disorder are more susceptible to falling victim to scams or fraud. Dr. Lauren Hersch Nicholas, a Professor at the University of Colorado School of Medicine, published a paper with several co-authors which detailed the instances of abuse and fraud of people with undiagnosed memory disorders. Dr. Nicholas observed that a person’s overall household wealth declined in the ten years prior to their diagnosis of Alzheimer’s or another memory disorder. People with limited resources are disadvantaged when it comes to looking out for these financial warning signs. Without someone to keep an eye on their spending or to check in with them on a regular basis, financial problems may go unnoticed for an extended period of time. This can lead to substantial financial consequences and leave the person without sufficient money at a time when they may need it most. Overall, researchers are optimistic that these findings could enable the development of an algorithm to identify individuals who might be suffering from impaired financial decision- making due to Alzheimer’s or another memory disorder. Until then, this study can serve as a “warning” to older Americans and their families to explore a financial power of attorney to serve as a safeguard in addition to watching out for these early warning signs. The Law firm of Peck Ritchey, LLC, affiliated for many years with the Illinois Chapter of the Alzheimer’s Association, has recently been named the Legal Education Partner of the Association. Kerry Peck, Managing Partner of Peck Ritchey, LLC serves as Chair of the Illinois Supreme Court Commission on Elder Law and previously as President of the Chicago Bar Association. Mr. Peck is Co-Author of Alzheimer’s and the Law and Don’t Let Dementia Steal Everything, books which he wrote at the request of the American Bar Association. Kerry Peck served on the Association’s Board for many years and the Law Firm was honored last year by the Alzheimer’s Association. Peck Ritchey LLC is a one-stop shop for families navigating the devastating effects of a loved one with Alzheimer’s Disease.
- Alzheimer’s Association volunteer Bev Miller shares her experience as a caregiver
One way to tackle the challenges caregivers face is to join a support group specifically geared to those taking care of loved ones. Peer-led groups not only reduce social isolation and provide psychosocial support; for those facing similar health issues, they also provide practical advice about self-care and how to navigate the health system, according to a 2022 study in the journal Family Practice. Greg Link, director of the office of supportive and caregiver services in the Administration for Community Living, agrees: “Support groups provide much-needed opportunities for social and emotional connectedness and are important sources of information and education about one’s role as a family caregiver.” What should you expect in a support group? Caregiving groups may meet in person at hospitals, libraries, community centers or cafés. Or they may meet virtually, online. “We ask questions like, how are you doing? What’s worked this month? What hasn’t worked?” says Bev Miller of Arlington Heights, Illinois, a former teacher and caregiver who has led support groups for the Alzheimer’s Association since 2010. People come to support groups to learn tips, coping strategies, empathies. “They learn they shouldn’t explain or argue. Instead, divert. Give them ice cream,” says Miller, whose group’s members are handling loved ones with dementia. But they also discuss weighty issues such as whether to put their loved one in a facility. Her monthly 90-minute support group session is free and meets over Zoom. “People often say they feel better . . . that other people understand what they’re going through,” she says. “We can’t fix their problem, but they know they’re not totally alone.” How can you find the right support group? When first joining a group, Miller says, participants shouldn’t worry that they don’t know anything about caregiving. “That’s good. Others can share what they’ve tried,” says Miller, who says her group usually has four to eight people show up. “People in the group can say, ‘Been there, done that.’ It’s a learning process.” If you don’t feel comfortable with one group, don’t give up. “Support groups are unique. They have personalities,” says Marvell Adams Jr., CEO of Caregiver Action Network. “Some people want detailed information, while others ... just want someone who understands.” Some groups teach specific skills to improve mental health and well-being, says Dolores Gallagher Thompson, a clinical psychologist, researcher and professor emerita of psychiatry and behavioral science at Stanford University. “Most caregivers have some degree of depression. Some have considerable depression, anxiety, frustration, guilt, feeling they did not do enough,” Thompson says. “At some point a caregiver is going to want to learn specific skills for stress management.” “If I were seeking out an online or telephone group, I would ask a variety of questions about the content and focus and what to expect in terms of when I meet,” as well as what kind of training the facilitator has had, says Robert Glueckauf, professor of behavioral sciences and social medicine at Florida State University College of Medicine, who leads ACTS 2, a training and support group for Black caregivers of loved ones with dementia. The important thing is to find a space where you can share with people who can relate and won’t judge. Knowing that you are not alone can make a world of difference. “People need to understand if they try once and it’s not OK, they’re not a failure. Maybe they need to find a different group,” says Miller. Who leads the group? You may find both in-person and online versions of these meetings: 1. Peer-led groups. Often former caregivers, such as Miller, lead these groups. Typically, they encourage caregivers to open up about their emotions and experiences and try to find humor in difficult situations. 2. Groups led by trained facilitators. Social workers, psychologists or clergy members act as facilitators or teach techniques to handle communication or stress using, for example, cognitive behavioral therapy or mindfulness. 3. Online forums. Unlike the first two, these groups, often on a social media site such as Facebook, allow caregivers to drop by anytime. Many have moderators who may post a question to get discussion going or direct people to resources. Click here to read more about Bev's experience and finding the right support group for you.
- My journey to volunteering with the Alzheimer's Association
Author: Lee Starr Hello, my name is Lee Starr, and this is my story of how I became a volunteer with the Alzheimer's Association. It all started when I attended a volunteer fair in Glenview. I met some incredible staff members from the Alzheimer's Association, and after chatting with them, I felt like it would be a great fit for me. Excited about the opportunity, I gave them all my information, and soon after, I received a call that set everything into motion. I was introduced to Krystal, who told me about the Longest Day fundraiser. The Longest Day is a unique event that encourages people to participate in activities they love while raising funds and awareness for Alzheimer's care, support, and research. Knowing I could help by making calls and doing mailings, I eagerly began my journey. Living in Evanston, I decided to reach out to organizations on the North Shore. I started with local libraries, senior centers, and senior living locations. Then, I extended my efforts to fraternal organizations like the Lions, Kiwanis, Rotary, Elks, Moose, Knights of Columbus, and Shriners. The response was positive, and I felt a growing sense of purpose. Exploring the Longest Day website, I found activities that looked fun and engaging like karaoke, crafting, bowling, and various recreation center activities. I thought about the people and places where a flyer might make the most impact, reaching out to those who might care about Alzheimer's or know someone with the disease, or be interested in philanthropic work. In total, I sent out about 300 flyers. My main activity for the Longest Day fundraiser was making calls and mailing these flyers. It brought me immense joy to raise Alzheimer's awareness and show people how they could get involved in a way that they enjoyed. Although the Longest Day has passed and folks have finished their events, this project continues throughout the year. There is still much work to be done, and I hope to inspire others to join me in the fight to end Alzheimer's. Together, we can make a difference. The Longest Day is all about love: love for our family members, friends and neighbors living with Alzheimer’s disease, and for their heroic caregivers, whose days are truly never ending. Team up with the Alzheimer’s Association, select an activity you love, and plan your event on or around The Longest Day. Volunteering with the Alzheimer’s Association has not only allowed me to make a difference in the lives of others but has also enriched my own life in countless ways. The experience has taught me the value of empathy, patience, and resilience. It has reinforced my belief in the power of community and the importance of advocating for a world without Alzheimer’s. I am grateful for the opportunity to contribute to such a meaningful cause and remain committed to supporting the Alzheimer’s Association in its mission to advance research, provide care and support, and promote brain health. My journey in volunteering has been a testament to the impact that collective effort and compassion can have on creating positive change. Unsure of what to do for The Longest Day? For more information for ideas click here, We’ve also compiled activity ideas for you – Find An Activity That You Love! The possibilities for The Longest Day are endless, remember, it is all about love!
- Reigning NASCAR Cup Champion, Ryan Blaney, Champions Brain Health Awareness and Support
The highly anticipated NASCAR Chicago Street Race Weekend is returning for its second consecutive year, promising even more excitement and high-octane action. Racing fans from around the world are set to gather in the heart of Chicago for an unforgettable weekend of thrilling street racing July 6 -7, featuring top drivers, including Ryan Blaney. Ryan Blaney, the driver of the No. 12 Team Penske Ford Mustang, continues to make headlines both on and off the track. As Blaney enters his ninth full-time NASCAR Cup Series season, he celebrates not only his latest victory at the inaugural Cup Series race at Iowa Speedway earlier this month but also his 2023 Cup title win. With 11 NASCAR Cup Series victories, an exhibition win from the 2022 NASCAR All-Star Race, seven NASCAR Xfinity Series wins, and four NASCAR Craftsman Truck Series wins, Blaney is a force to be reckoned with in the racing world. Blaney’s family dedication extends beyond racing. After losing his grandfather, Lou Blaney, to Alzheimer’s disease at the age of 69, the family experienced firsthand the challenges of this devastating disease. The Alzheimer's Association provided the family with valuable resources and support during their difficult time. "Grandpa Lou was an important figure in my life, paving the way for my career as a race car driver," said Blaney. "Our ongoing partnership with the Alzheimer’s Association through The Ryan Blaney Family Foundation is a way for me to continue to honor my grandfather’s legacy while helping millions of Americans across the country who are directly impacted by Alzheimer’s and dementia." Since 2019, the Ryan Blaney Family Foundation has raised more than $750,000 for the Alzheimer’s Association to support the organization’s work to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. About the Ryan Blaney Family Foundation Founded in 2018 by Ryan Blaney and his family, the Ryan Blaney Family Foundation is a registered 501(c)(3) based in North Carolina. The foundation is dedicated to raising awareness and resources for brain health, specifically focusing on Alzheimer’s disease and concussions. The Blaney family's personal experiences with these brain health issues have fueled their commitment to supporting those affected.
- Extreme summer heat precautions for families facing Alzheimer’s and all other dementias
As the temperatures rise across the country, extreme heat can have a significant impact on everyone's safety, but they can be especially stressful and confusing for individuals with Alzheimer’s and other dementias. Alzheimer's disease causes a number of changes in the brain and body that may affect their safety, including changes in sensitivity to temperatures. Today, there are more than 6.9 million Americans living with Alzheimer’s disease, including 250.600 in Illinois. Taking measures to plan ahead for weather changes, like extreme heat, can prevent injuries and help a person with dementia feel more relaxed and less overwhelmed. "People living with Alzheimer’s and other dementia can be vulnerable during extreme weather because their judgment may be impaired and they may be unable to communicate discomfort," said Delia Jervier, Executive Director Illinois Chapter. "It’s really important to take extra precautions with these individuals when there is extreme heat or other excessive weather conditions." The Alzheimer’s Association is offering important safety tips for caregivers and families facing Alzheimer’s and other dementias to prepare for the hot summer months ahead: ● Make a plan. Family and friends should prepare accordingly and make plans to regularly check-in on a person living with Alzheimer’s disease and other dementias during extreme heat. Arrange alternative plans for cooler spaces, if air conditioning is unavailable, and dress in loose, light clothing. ● Pay attention at night. Keep people living with Alzheimer’s disease and other dementias cool by using fans and keeping the air conditioning on. At night, low temperatures can still exceed 75 degrees with little fluctuation in humidity levels, making for difficult and exacerbating sleeping conditions, heightened anxiety and increased agitation. ● Prepare for behavioral challenges. Research shows that heat can increase agitation and confusion in people. Try to remove behavioral triggers by addressing the person’s physical needs related to the heat, then tending to their emotional needs. ● Stay hydrated. Increased water intake is essential to maintaining good hydration and health during extreme heat. Know the signs of heat exhaustion to avoid heat stroke. Dehydration may be difficult to notice in a person living with Alzheimer’s disease and other dementias, as signs like increased fatigue, dry mouth and headache may be difficult to detect. People taking diuretics, sedatives, or certain heart medication may not sweat as much as others, but this does not mean that they are not hot. ● Stay indoors and out of the sun. Heat stroke and heat exhaustion may occur in extreme heat conditions but symptoms may be difficult to detect in people living with Alzheimer’s and other dementias. Keep individuals cool by using air conditioning at home or move to a public place, such as a senior center or shopping mall. If you must go outside, be sure to dress appropriately, loose, light clothing, wear a hat, and apply sunscreen with an SPF of at least 30 or higher. ● Stay informed. Keep an eye on local weather forecasts. High temperatures are not the only cause for concern. Humidity and air pollution indices can cause breathing difficulties. The person should be monitored regularly and seek medical attention if symptoms arise of dehydration, heat exhaustion, or heat stroke. To learn more about additional safety precautionary measures for Alzheimer's, you can visit the Alzheimer's Association website at alz.org.
- Alzheimer’s Association offers tips for discussing cognitive concerns with your doctor
The Alzheimer’s Association Illinois Chapter encourage individuals to speak with their health care provider regarding cognitive concerns. Today, there are more than 6.9 million people 65 and older who are living with Alzheimer’s dementia, with 250,600 in Illinois. The emphasis on early detection underscores the proactive approach towards cognitive health. By likening routine health check-ups like blood pressure, cholesterol, and skin checks. Cognitive health as an integral part of an individual’s overall wellness routine. The call for everyone, even those not currently experiencing memory problems, to speak with their medical provider if there are any concerns. It emphasizes the preventative aspect of healthcare, encouraging individuals to address potential issues before they become more serious. The comparison to other facets of health further reinforces the idea that cognitive health should be treated with the same level of importance as other aspects of physical well-being. The phrase “check-up from the neck up” is not only catchy but also effectively communicates the significance of cognitive health. It simplifies a potentially sensitive topic and encourages individuals to take action in a positive and memorable way. Early detection and diagnosis of these conditions offers the best opportunity for care management and treatment. It also provides diagnosed individuals and their caregivers more time to plan for the future, adopt lifestyle changes that may help slow disease progression, participate in clinical trials and to live with higher quality of life, for as long as possible. Early detection and diagnosis are the first steps towards creating a plan of action. According to the 2023 Alzheimer’s Association Facts and Figures report, too often individuals with memory concerns are not discussing the issue with their doctor — only 4 in 10 would talk to their doctor right away. Individuals hesitate because they believe their experiences are related to normal aging, rather than a potential diagnosable medical condition. Yet, 7 in 10 would want to know early if they have Alzheimer’s disease if it could allow for earlier treatment. “While discussing cognitive concerns with your health care provider can be challenging, it’s really important,” said Delia Jervier, Executive Director, Alzheimer’s Association Illinois Chapter. “Having these conversations with a doctor can help facilitate early detection and diagnosis, offering individuals and families important benefits, not only treatments, but emotional and social benefits, access to clinical trials and more time to plan the future. It is also important to note that some forms of cognitive decline are treatable.” Find the right doctor. In most cases, the first point of contact for concerns about memory and thinking is with your primary care physician. Ask your physician how comfortable they are identifying and diagnosing cognitive problems and whether there are circumstances in which he or she would refer to a specialist. Most often, your physician will perform an initial assessment, and if cognitive decline is detected, order more advanced testing or refer you to a specialist for a more definitive diagnosis. If your doctor doesn’t take your concerns seriously, seek a second opinion. Be prepared. Come to your visit with a list of any changes in your health, including your mood, memory and behaviors. Include a list of past and current medical problems, current prescriptions, over-the-counter medications, including vitamins or supplements. Most importantly, be sure to have your list of questions and be prepared to answer the doctor’s questions openly and honestly. Get educated. When speaking to the doctor, be sure to ask what tests will be performed, what the tests involve, how long each test takes and when the results will be available. The Alzheimer’s Association offers an interactive tour of what to expect when being evaluated for memory and thinking problems on its website. The Alzheimer's Association is the leading voluntary health organization in Alzheimer’s care, support and research. Our mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer’s®. Visit alz.org or call 800.272-3900.
- Quest to Success fundraising challenge for the Walk to End Alzheimer's
We are excited to launch the "Quest to Success" challenge to help you kickstart your fundraising efforts for the Walk to End Alzheimer's! This journey is more than just a walk—it's a mission to make a difference in the lives of those affected by Alzheimer's disease. Step 1: Begin Your Quest Raise or donate $50 between June 10-23 to earn a branded Walk to End Alzheimer's ‘Anywhere Belt Bag’. Here are three ideas to help you reach your first milestone: Self-Donation: Contribute $25 yourself. Remember, donations of any size make a significant impact! Offer Services: Provide services like yard work or dog walking to friends and family in exchange for contributions. Share Your Story: Post your personal story on social media and ask your network to support you with small donations. Step 2: Keep the Momentum Going Raise an additional $50 to earn the exclusive event day t-shirt. With $100 raised, you'll not only help create a sea of purple on Walk day but also spread awareness about Alzheimer's disease. Step 3: Celebrate and Expand Invite 3 friends to join your team once you've raised $100. Encourage each person to raise $50 to earn their own ‘Anywhere Belt Bag’. Aim Higher for More Rewards Keep fundraising and aim for the $300 incentive level to secure additional rewards! Your dedication and hard work will help us get closer to a world without Alzheimer's. Across the nation, the Alzheimer's Association Walk to End Alzheimer's® is full of flowers, each carried by someone committed to ending this disease. Because like flowers, our participants don't stop when something's in their way. They keep raising funds and awareness for a breakthrough in the fight against Alzheimer's and all other dementia. .Click here to register today and be the first to know about Walk in your area. Thank You! Together, let's make this the most successful Walk to End Alzheimer's yet!
- Celebrating Unsung African American Male Caregivers on Father's Day
Contributor: Timothy Woods Father's Day is a time to celebrate the men who have shaped our lives with their strength, wisdom, and love. This year, we shine a spotlight on a special group of fathers and father figures—African American male caregivers who are tirelessly caring for loved ones with Alzheimer’s and other dementias. Their stories of dedication and resilience deserve recognition and honor. Timothy (Tim) Woods began his day long before the sun rose while being a caregiver for his dad Ernest A. Woods, Sr. who was diagnosed with dementia. As a husband, brother, father to twin boys and the primary caregiver for his elderly father. Tim’s life was a constant juggling act. "It was tough, but it’s what you do for family," he says with a resolute smile in his voice. Tim’s journey into caregiving began seven years ago in 2017 when his father was diagnosed with dementia until his passing in 2021 at the age of 88. Once a lively and independent man, started showing signs of memory loss, agitation and confusion. "It was heartbreaking to see the changes," Tim recalls. "But I knew I had to step up and take care of him." For Tim, a typical day involves assisting with dressing him, managing medications, and ensuring his father was safe and comfortable. "Routine was crucial," he explains. "It helps him feel secure spending many hours daily ensuring dad’s care." Alongside these duties, Tim is a loving and devoted husband caring for his two nine-year-old twin sons, trying to balance his responsibilities as husband, father and a caregiver. "It’s challenging, trying to balance work life - caregiver balance, especially while running my own business," Tim admits. "But we found our rhythm." Despite the challenges, Tim found moments of joy in his families’ shared routines. "Seeing my dad smile, while listening to his favorite Blues artists from BB King to Howling Wolf, those moments gave a sense of relief from some real chaotic moments." The emotional impact of caregiving is significant, and Tim acknowledges the toll it takes. "There were days when it was totally overwhelming," he confides. "But my faith and a support network kept me going." Tim’s community and the resources received from the Alzheimer’s Association was pillars of support. "They understood the cultural nuances and provided a level of support that felt personal and genuine," he says. This support received was crucial in helping him navigate the emotional and mental challenges of caregiving. African American male caregivers often face unique challenges, from societal stigmas to systemic healthcare disparities. Tim has experienced these issues firsthand. "Navigating the healthcare system can be frustrating," he says. "There’s a lack of understanding and support for what we go through." Tim is part of a growing demographic of Black male caregivers. Nearly 40 percent of caregivers for older adults are men, and a third of them are Black. However, Black men face unique challenges. They experience the poorest health outcomes of any group in the U.S. and are less likely to be married, often taking on caregiving responsibilities alone. Additionally, they contend with negative societal perceptions. "Black men in America face stress on multiple levels due to our profile and treatment.” Despite these obstacles, Tim remains a fierce advocate for those affected by Alzheimer’s or other dementias in honor of his father. "You have to be persistent," he says. "You have to fight for your loved one’s needs." Amidst the challenges, Tim found moments of joy and fulfillment. My dad always recognized me, he forgot others constantly, but he always recognized me, even if just for a moment, or seeing my boys sit in his recliner and they now understand PaPa’s health condition and were active participants in this year’s Alzheimer’s Association ‘Release the Silence,’ African American Conference, they’re trying to make a change, that bring me so much happiness," he shares. "Being able to educate my sons on what PaPa was going through bringing resilience and compassion, is incredibly rewarding." Tim has also found solace in connecting with other African American male caregivers. "Sharing our experiences helps," he says. "It reminds us that we’re not alone." This Father’s Day, Tim message to fellow caregivers is one of encouragement and solidarity. "Take it one day at a time," he advises. "Don’t be afraid to ask for help. And remember, your love and dedication are making a difference, even if it doesn’t always feel like it at the moment." As Tim looks to the future, his hopes are mixed with realism and optimism. "I know the journey ahead will be tough," he says. "But I’m committed to continue in the fight to live in a world without Alzheimer’s." Tim Woods’ story, and the stories of many other African American male caregivers, are a testament to the strength, love, and resilience that define true fatherhood. This Father’s Day, we honor these unsung heroes, celebrating their dedication and the profound impact they have on their families and communities. To all the African American male caregivers out there, we see you, we honor you, and we thank you for your unwavering love and commitment. Happy Father’s Day!
- Capacity: What is it and How Does it Affect Me?
By: Brandon Peck Hypothetical. Kathryn, 65, and Thomas, 81, have been living together for over 15 years, but have never married. Thomas divorced his first wife, Jennifer, to be with Kathryn. Thomas has three children from his first marriage who are still upset about the divorce and, therefore, see their father infrequently. Thomas has long expressed interest in updating his estate plan because his current will does not include Kathryn. Thomas also wants Kathryn to make any necessary medical and financial decisions for him in the future. Lately, Kathryn has noticed Thomas becomes easily confused about where he is and what he is doing and has started forgetting who people are. Doctors have suggested Thomas is most likely developing dementia. Does Thomas have the required mental capacity to execute new legal documents? Understanding Capacity. To execute estate planning documents, such as a will, a person must possess the requisite mental capacity. Testamentary capacity is defined by the law as “sufficient mental ability to know and remember who the natural objects of one’s bounty are, to comprehend the kind and character of one’s property, and to make dispositions of one’s property according to some plan formed in the mind.” In laymen’s terms, testamentary capacity requires a person to be of sound mind and memory. They must be able to know what a legal document means, and the implications of that document should they sign it. More precisely, decisional capacity requires: The ability to understand and appreciate the nature and consequences of a decision. The ability to reach and communicate an informed decision. And the ability to weigh the risks versus the benefits. Capacity is also needed for a person to appoint a trusted friend or family member to make medical and financial decisions for them in the future. While capacity is not an all or nothing condition, attorneys must make assessments regarding a client’s capacity to execute legal documents. Therefore, it is important to execute legal planning documents while you still have the mental capacity to do so. In Thomas’ case, an attorney may judge that he does not have the required mental capacity to execute new legal documents due to his inability to remember who people are and his doctors’ belief he is developing dementia. This leaves Kathryn unable to inherit from Thomas or make medical and financial decisions for him. Most likely, a court would appoint Thomas’ children to make those decisions. Hiring an Attorney. To avoid a situation like Thomas’, it is important to hire a competent elder law attorney that can help secure you and your family’s future. An attorney can help you navigate complex issues which may arise during the estate planning process, such as interpreting different federal and/or state laws and protecting family assets while keeping you eligible for government benefits. Not all attorneys are the same, and just like you wouldn’t hire a plumber to rewire your house, you shouldn’t hire a criminal attorney for estate planning services. To find an elder law attorney that fits your needs, ask friends and family for a referral and seek guidance from local community groups. Once you have found an attorney, make sure to verify their background by reviewing the law firm’s website and inquiring about experience. The selection of the proper attorney is very important in securing your family’s legacy. Had Thomas sought the services of an elder law attorney sooner, they would have assisted him in executing a new estate plan that ensured Kathryn’s future and advised him on what documents to execute to give Kathryn authority over his medical and financial decisions. What to do Next? Now that you know how important it is to seek out the services of an experienced elder law attorney while you still have the capacity to execute legal documents, what should you have them do? Estate Planning. Regardless of the zeros in the bank account, everyone needs an estate plan. A will allows you to dictate how your property will be distributed after death and address questions such as guardianship of children, charitable donations, funeral and burial wishes, and naming an executor to manage the estate. Alternatively, a revocable trust can be utilized to distribute property during your lifetime and help your family avoid the probate process altogether, post-death. Elder law attorneys can help you execute either kind of document no matter how simple or complex. Powers of Attorney. Two of the most important documents you should execute while you still have capacity are powers of attorney for healthcare and property. Without these documents in place, you and your family will lose control over your future as a court will have to step in to determine your best interests should you lose capacity. A) POA for Healthcare. Use this document to appoint a trusted friend or family member to be your “agent” who will make medical decisions on your behalf should you lose capacity. The Power of Attorney document clarifies your wishes should you become unable to speak for yourself. This includes crucial decisions related to medical treatment, end-of-life care, and organ donation. B) POA for Property. Use this document to appoint an “agent” to manage finances and property should you lose capacity. This could include paying bills, managing bank accounts, and caring for the home. To safeguard the future of you and your family tomorrow, it is imperative that you execute the proper legal planning documents while you still have capacity today. The care and expertise that only an elder law attorney can provide can help you do just that.
- Tammy's Heartbreaking Journey: Sharing Her Mom's Story with Alzheimer's During Alzheimer's Volunteer Week (April 16 - April 22)
Author: Tammy D. I thought I’d seen it all, but nothing prepared me for the day in February 2018 when my mom, Joan, was diagnosed with Alzheimer's disease. It all happened on the way to a craft show when she started repeating herself, and suddenly I knew something was wrong. My dad had noticed some worrying things like her needing help remembering things and writing checks. That's when we realized it was time to get her checked out by a doctor. I looked at the Alzheimer's website for information and gave my mom some cognitive skill tests at home. It was worse than I had hoped: She could no longer count money back or tell me the time. We decided to go to a neurologist, and that was when it all became official, she had Alzheimer's. The neurologist confirmed no cure was available, and that's when it hit me in the face. I felt like my heart had dropped into my stomach. To see the look on my father’s face was the second hit. I knew this was going to be a long and difficult journey for our family. We had a good year with my mom while she was on the medication, but it started to take a toll on my father; he was tired, run-down, and not eating well. I had my mom at home during the day to care for her, but I was working from home at this time due to COVID and wanted to give my dad a rest. We took comfort in the fact that we were not alone on this journey. I could always rely on the Alzheimer's website for many questions and webinars to help my mom. They often had answers for us when we felt like no one else did. One night, I was with my mom and dad playing cards with my brother. I showered my mom, washed her hair, dressed her, and got ready to tuck her into bed. While dressing her, she asked me, "Can you get my daughter if she is still here? I want to say good night." At that moment, my heart broke. Here was this amazing woman, yet she could not remember that I was her daughter. I walked the short distance to the kitchen, returned to the bedroom, and said with a witty yet compassionate tone, "Hi, Mom; I hear you wanted to say good night." She looked at me lovingly and said, "Good night. I love you." Tears filled my eyes as I responded, "I love you too, Mom." She then asked me if the lady caring for her and the cleaning lady were still there because she wanted to speak with them. I said yes, and at that moment, for a few minutes, we were the same three people - daughter, cleaning lady, and caregiver. It is horrible when they look at you, and you know they have no idea who you are. Ever since then, I have been telling everyone the same two things: First, "time is the most precious gift in life!" and second, we lose our loved ones twice. My mother passed away in May 2021, and my father passed away due to lung cancer shortly before that. I was determined to make the most of the time left with them and to help others, so I got involved with the Alzheimer's Association to raise awareness and funds for research. According to the Alzheimer’s Association, 2022 Facts and Figures report, conversations with family members and health care providers outreach and educational messages may empower individuals to seek help when they become concerned about cognitive issues. Community-based, participatory educational campaigns are another way to reach people who may not believe their problems are serious enough to warrant a medical visit. A dialogue between individuals with cognitive concerns, their families, and their physicians is a crucial first step on a journey toward understanding the magnitude of the issue. The report also shows the need for care, support, and research for the 6.7 million Americans with Alzheimer’s. Behind these numbers are friends, family, and loved ones, which is the reason why I fight. My hope is that no other daughter or son ever has to face such grief, sorrow, and despair again. I vow to never forget my parents, their love and dedication, and the hope I have for a brighter future. Caring for a loved one with Alzheimer's is a long, arduous journey. I hope my story helps give you the strength and courage to make the best of this time, no matter how hard it might be. Together, with the help of the Alzheimer's Association, we can make a difference in this fight. To our volunteers, you strengthen, empower & inspire our communities. Your stories of love and hope remind others they are not alone and move the fight to #ENDALZ forward. During #NationalVolunteerWeek and always, we thank you for being the heart of the Alzheimer’s Association. The Alzheimer’s Association offers free local support throughout the state, including support groups, education, and the Association’s 24/7 Helpline 1-800-272-3900. This support can be a lifeline to caregivers. The Alzheimer's Association website and the phone number were my lifelines during my difficult time. If you are dealing with Alzheimer's disease in your family, I urge you to take advantage of these invaluable resources. alz.org/facts.
- Join The Longest Day Today!
HOW WILL YOU MAKE THE FIGHT TO END ALZHEIMER’S YOUR OWN? The Longest Day (June 20th) is a special event dedicated to love for our family members, friends, and neighbors living with Alzheimer’s disease, and for their heroic caregivers, whose days are truly never-ending. This event brings together people from all walks of life to support the fight against Alzheimer’s in a unique and personal way. The Longest Day is an annual event organized by the Alzheimer’s Association, symbolizing the challenging journey of those affected by Alzheimer’s disease. It takes place on the summer solstice, the longest day of the year (June 20), to honor the endurance and strength of those facing Alzheimer’s every day. Participation in The Longest Day is simple and flexible. Here’s how you can make the fight to end Alzheimer’s your own: Team up with the Alzheimer’s Association Illinois Chapter by registering and join the global movement to fight Alzheimer’s. Select an activity you love whether it's hiking, baking, playing a musical instrument, or hosting a virtual event, choose an activity that brings you joy and can be shared with others. Plan your event, organize your chosen activity on or around The Longest Day. It’s a great way to bring your community together for a cause. The Longest Day is more than just a fundraiser; it’s a powerful way to honor those affected by Alzheimer’s and to show solidarity with caregivers who work tirelessly every day. Your participation helps raise awareness and funds for crucial support services, research, and ultimately, finding a cure for Alzheimer’s disease. The possibilities for The Longest Day are endless. Whether you’re participating as an individual, a family, or a group, remember that every action counts. It’s all about love and making a difference in the lives of those affected by Alzheimer’s. Join us today and turn your passion into purpose. Together, we can make The Longest Day a beacon of hope and love in the fight against Alzheimer’s. Click here for more information and to register.











